I was born with a disorder called Arthrogryposis. It is a rare condition characterized by stiff joints and abnormally developed muscles. When I was born the MDA covered this disorder under their umbrella, helping families with children that have this disorder. When I was born the doctors told my mother and father, I would never walk, dress myself or attentend normal school.
I did all of those things, yes, I did some of them after normal time a child would do them, but I did them and exceeded any expectation doctors or people had of me. In a large part by all the support given to my family and me by the MDA.
The MDA, does what they say they do. They help parents get medical equipment they need for their children. They have summer camps (that are free to parents) every summer so children will get to experience the out doors in a safe enivorment.
The MDA is truely trying to give people with Muscular Dystrophy disorders the quality of life of those not affected by the many different disorders. They fight to make sure that people affected by these disorders have the same health care advantages that other Americans have facing other disorders.
Over the years I have raised money for the Association, I have written my congressmen concerning bills that will affect the health care of those people affected by these disorders. In the recent past I have not been as active as I should be. I have recently began writing my congressman again, and I will begin to again raise money for the MDA.
If you are looking for an orginization to give to I ask that you please consider the MDA.
Below is a link to their website, please check it out. Someone living with a Musculas Dystrophy Disorder is closer than you think.
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